Or lack thereof.
I keep forgetting to blog this, but Greg's hair did finally start falling out late last week. I say finally, because, according to the literature, it was supposed to fall out about a week earlier. But, as I've said before, he never really does anything he's supposed to do. He tells me there's not much left. I'll try to post a pic when I can. Send sunscreen!
Special thanks to the Connor family for thinking of me yesterday. It was just what I needed and really brightened my day.
Talked to Greg this morning. They got another 0.2 units yesterday. Going in the right direction! That makes a grand total of 1.4 units. Altho I blogged yesterday that we need 1.7, his doc wants to get 2.0, just to be on the safe side. (It seems the information changes by the minute -- depending upon who we talk to.) If he keeps up the way he has, we could have this by the end of the week. Keep bugging the Big Guy (and no, Ian, you don't have to show your work).
Yesterday we got the new, very tentative, schedule. The admission date of next Monday, June 9, is definitely off. If he can complete the collection by the end of the week, the new plan is to give him two weeks off to rest his bone marrow and admit on Monday, June 23. We would see the doc in St. L on the previous Tuesday, June 17. If we don't complete collection, then we have no idea what the plan will be. But, lets think positive, right?
He's gotten 2 transfusions over the last week or so, and he'll get plateletes today. Other than that, I'm just encouraging him to rest, rest, rest so he can continue producing those stem cells. He's getting pretty bored, as there's only so much TV you can watch, but there's a hockey game tonight, and Debbie left him with DVDs of Gilligan's Island, Green Acres, and My Favorite Martian, among others. Oh, joy.
Thanks to all for the love, prayers and support. I really can't tell you how much it means to all of us.
Love,
Greg, Ann, Eric & Matthew
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4 comments:
Hey Ian~
Pthththththththththththth!!!!!!!!
Keep up the good work Dr. Skibinski! Pump those little buggers out! They don't call you Gregarious for nothing!
Okay, judging by Mark's work schedule, I can come down the week off 6/29-7/5-6? Possibly 7/13-7-20 if needed but would have to work on some kid care.....
later~~~~~
JS
Oh, and I also forgot to mention that his bones are REALLY achy. This sounds bad, but its really a good thing. The growth factor is supposed to do this. Up until yesterday, he felt great. Then it came over him like a wave. We hope this means the growth factor is working, and he's spittin' out those cells.
More later.
Does this mean he's going to get taller too?
;-0
From the way it sounds, Greg is starting to resemble his younger brother a little bit more these days. Don't worry Greg, Tom has some great hair product.
Thanks for keeping us up to date on the blog. We know it's hard for you to spend too much time on the phone these days.
Ann, why don't we tentitively schedule Tom & I the week I originally planned (week after the 4th of July) based on the dates Judy said she would be available. It would work out well if we could come down the same week rather than seperate weeks as originally planned but of course that's not what's important. Keep us posted and we'll do whatever we need to.
We're thinking of you all and putting in a few good words to the Man upstairs for you Greg, and for Ann and the Boys as well.
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