Steady as He Goes

I had a busy weekend, so once again I apologize for not posting as promised. Saturday Matthew and I worked like Egyptian slaves sorting toys and picking things to get rid of. Sunday, we had a great day at the lake with the Altoonians. Matthew went tubing all by himself and I didn't even have a nervous breakdown! (Although it was close!). Huge thanks to Tom and Julie for a wonderful day. (And, I was right -- Matthew was asleep by the time we got to SDC).

Greg's platelets held at 19 from Tuesday to Friday. They gave him some Friday, but they weren't HLA matched. He'll go again tomorrow for labs, so we'll see if he can hold the non-matched ones. We were pretty happy he held all week. That's a good sign.

The GVHD is a little worse, so Dr. Vij upped the steroids again. His skin rash is a good indicator, and its worse. But, more importantly, his kidneys, liver and lungs can be affected by GVHD, so that's what we're more concerned about. But, Vij is on top of it, and its not nearly time to panic.

The CMV is worse, too. That med was costing $2400 per month (not to us -- we got the first month free and Greg is working on getting it set up so we won't have to pay at all). But, Vij doubled it, so theoretically it would cost $4800 per month. (I did that math all by myself!). Don't pass the hat just yet. Vij said if we can't work out the free drugs, he'll give it IV and that way insurance will HAVE to pay for it. The only drawback to that is its twice a day. But I'm sure Greg will be able to work it out with the drug company to send it free. I'll keep you posted.

That's about all for now. Thanks to all for the prayers. Keep 'em coming!

Us