Greg got sprung from the hospital late Thursday, and this is the first opportunity I've had to blog. We had to rush to "Nope Lodge" to get there by the 7 p.m. check in deadline, or else we would have been homeless for the night. We practically slid in the door sideways to make it.
We had to beg to get him discharged Thursday. They wanted to keep him another night. But, I knew he was ready to go on a 3 state killing spree if he didn't get out of there. They were really worried about his blood sugars. Whereas his was soooooo low when he passed out and was admitted, the issue now is that they're through the roof -- above 300. Its because of the GVHD and all the steroids. They made him promise to be good, check his sugars 4 times a day, watch what he eats, and take his insulin. And, the doctor called yesterday to check his numbers in case he needed a medication adjustment. He didn't. The steroids are being gradually reduced, and he was much more active than when he was in the hospital. So, while he still needs insulin a couple of times each day, he's in pretty good shape.
We're getting settled in. Our room is really small, but its free so its hard to complain. Food storage is an issue, too. We get a small bin for the refrigerator, and a small locker for non-perishables. But, we're figuring it out. And, we're eating out, too. Had some great Mexican food and NY-style pizza. We're going to the Hill tonight.
We're at the clinic now. Greg needs platelets today, and because of the HLA match, it could take a while for them to get here. But, we have a TV, so that helps. Funny thing -- there's really nothing good on anyway. Maybe we're not missing too much after all.
Matthew is having a great time with the Altoonians. They went to see Ice Age and ate at Doe's. Today they're going to the lake, and tomorrow Matthew moves over to the Wherley's. Eric and Nik tried their hand at cooking yesterday. Paula Deen's Breakfast Pizza. It starts out with a pancake and marinara sauce. I really didn't want to know any more. But, I've been assured the kitchen has been put back together. And, I got a promise that I wouldn't have to eat that recipe at least.
So, for now we are uneventful, which is how we'd like to keep it for a while. Thanks to all for your help. Pam, Matthew and I are cucumber freaks, so when I'm home next week, we'd be glad to help you out. I'll pass on your message to Eric to see if he wants anything. He's been picking some peppers from our garden, which has been a grand experiment. So far, his taste buds don't seem to have been permantently damaged.
3 comments:
Mexican food and NY-style pizza? Sounds great! Back in April, St. Louis’ Pi pizza restaurant made the news when it was asked by Obama’s staffer for a “delivery” to the White House. http://www.people.com/people/article/0,,20271608,00.html. Check it out, they may do delivery to the Hope Lodge! Glad to hear that “Greg is in pretty good shape.” Keep the good news going!
Good to hear that with the set backs, there is progress too! Haven't been able to read in awhile but you have had your hands full. Greg.....KNOCK IT OFF! Ann can only do so much. Enough of the attention seeking behaviors, if you want Ann to give you a kiss...just ask already! But seriously, keep up the good work and fighting the good fight. Thought and prayers of all Brewsters are with you(both). You have some amazing friends it sounds like..... they must be crazy like us!
Joe B.
we know all about blood sugars being up and down... Sam's were at over 600 for two days in a row then he was down to 42... he's having such hard time keeping them in check... his meter says HI to him if it's above 600 which it was three times this weekend... hope the blood sugar thing is under control for uncley greg now... love you... enjoy eating out... we never get to anymore with 3 kids that won't agree on anything except McDonald's (bleeeech!!!!)... love you guys!!!
Love,
becky,sam,gaby,sheridyn,trinity
Post a Comment