We really are. We booked a trip for Spring Break this coming March. We booked it last fall before this whole Myelodisplastic Syndrome thing reared its ugly head.
Dr. Vij looked at Greg's counts over the last few months, and said that although they are low, they haven't gotten any lower, and he's not had any major problems because of them. So he's in no hurry to do the allogeneic transplant at this point. As long as he's not having any major problems (defined as bleeding, frequent transfusions, frequent 'ramonia' or other infections), he doesn't want to rush into it because of the potential life-threatening complications of the allogeneic. So, now we wait, & monitor the counts. That's OK with us. All in all, the doc says he's in pretty good shape, considering. He's still got problems, but not as bad as they could be. We're waiting for them to do the biopsy now to confirm the MDS and see if there's any change to his disease. We won't get the results until next week.
Also, we were supposed to find out today whether or not Tom or Skibby is a match to be a donor for the transplant. While they got the results back from their tests, no one thought to "type" Greg! So, they drew about 13 vials of blood today (no wonder his counts are low!) and we'll find out those results in about 3 weeks.
Once again, thanks to all for your love, prayers, help & support. We'll post new results as we get them.
Love,
Us
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2 comments:
Well at least Disney World gets you out of St. Louis....
Going to Disney World is a wonderful idea! Just want to make sure Greg is going to give those Disney princesses a break. I am sure Eric and Mathew will handle them on their own just fine. Glad to hear the Doc thinks Greg is doing okay. Directly going to St. Louis instead of dealing with those docs in Springfield was a good move!
As always, you are in our thoughts and prayers.
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